Merry Christmas

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Top 10 lists

Top 10 things I will not miss about the hospital: 10. The cafeteria smells, especially in the morning 9. The parent shower 8. Super frequent packing and unpacking 7. Constant hand sanitizing 6. The parent "bed" 5. Fear of hospital germs 4. Nurse interrupted nights 3. Hearing babies cry down the hall or code blues on the PA system 2. Being apart from the rest of my family 1. Watching Steven feel miserable Top 10 things I will miss about going to the hospital: 10. The beautiful views from the windows 9. Housekeeping! 8. Lots of time to think or read or waste time on the internet 7. Unlimited pebbled ice 6. Room service! 5. Pastry deliveries from my dad 4. Meeting and visiting with parents who are in similar situations 3. Spending time with Steven, a captive audience 2. The feeling we are actively killing cancer cells 1. The wonderful doctors, nurses and staff that have taken care of Steven so well
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Back to school/ The prosthetic: Part III

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I have a minute to breathe--the girls are both napping and the boys are both at school. For once this week, I have a little time to myself. It's been a busy week. On Monday, Steven and Andrew both went to school. Getting them off was an undertaking. Our little house was a big mess to start out with, and somehow all the little things they needed had dissapeared. We couldn't find the hat the matched the outfit, or the paperwork that went with his prescriptions, or the right sock, or the right shoe, or the thermometer, or, at the darkest moment--the van keys. Steven wanted so badly to be early, but he was lucky to make it on time. Here is a picture. He may look like he's not that happy and it's because he isn't. He's not a fan of first-day-of-school pictures on a good day, but especially not when he is late. He loved his first day of school. When we first arrived onto the school grounds, some friends from his class saw him coming and came running and sh...
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It's official--5 years cancer free post treatment

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I've been looking forward to such a blog title for a long time and here we are.  Yay!  I am happy that this was our outcome, grateful for all the years we've had with Steven and for the many more to come, and humbled when I think of other cancer friends who weren't so lucky. Yesterday we had the appointments.  Steven didn't have a scan as normal, they just took an x-ray of his chest.  They do this because they are less worried about recurrence at this point and it reduces the amount of radiation he is exposed to.  So I don't know if I can officially call these scans, but his blood work was totally normal and his lungs were clear.  We have every reason to hope for Steven to live a long life, cancer free. We will continue these check-ups annually until he is 19 or 20, which will be 10 years out from treatment.  Hopefully we will feel as peaceful about those future check ups as we did yesterday.  It was a good day. And because I don't post so often, ...
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